访谈录 2012-09-27&09-29 食肉病患者谈乐观面对生活

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Aimee: Thank you. It felt pretty good too.

Katie: How did it feel? I was so proud of you, by the way. And it's just so moving I think for everybody here to see what a massive accoplishment this is. Tell me how did it feel when you're walking now? 

Aimee: So good. I mean after being sitting or lying down for so long, just being vertical¹, you know. You take for granted how wonderful it is just to look people in the eyes. 

Katie: Was there any point where you said "I can't do this. I'd rather die" ?

Aimee: No. Em, now, I don't... that was never really an option to me. Because I mean I love life, you know. It's a beautiful thing. It's something that I don't take for granted anymore. I never take for granted how beautful it is, you know, seeing a sunrise or, you know, the ocean, I mean, animal... You know, it's just so exhilarating and even more so now, it's like the senses are so deepened, you konw, smell, everything smells better, everything is more vibrant², colorful, even more beautiful than ever before. 

Katie: When I first met you in Atlanta this summer, I have to say, I was nervous. You know, I didn't know how I would deal with what had happened to you. It could've made me uncomfortable. But it became, I was made aware immediately that what you don't have is so eclipsed by what you do have. And it was such a remarkable³ opportunity, such an incredible experience for me to get to know you, and to talk to you, and to see your extraordinary optimism. I mean you're just an amazing girl. 

Aimee: Yeah, that's why I tell people, and that's why I don't like to be called like disabled, or like handicapped. Because unlucky there's a lot that I don't have that other people have, but there's a lot that I do have that other people don't have. And so I think we all instead of saying "I'm disabled", I just say "I have different abilities". 

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